Thursday, May 21, 2009

Life

I barely know where to start. My head is a muddle and so is my life. So many things are worrying or unsatisfactory at the moment and I can't begin to make sense of it all.

I am very worried about Jade. When going through (and chucking out) some old papers earlier on I came across a list of characteristics of self-rejection, and all the ones that aren't adult-centred are relevant to her, namely inferiority, insecurity, self-consciousness, shyness, critical, envious, jealous, unable to respond to others, over-sensitivity and touchiness. That describes her so well. She hates her younger sister and never has anything positive to say about her. They do play together but never have any close, caring, sharing moments. She is jealous, envious and critical particularly of Shannon but also of other friends. She will not share ANY of her toys with Shannon, snatches them, and yet thinks she ought to be able to play with anything of Shannon's without restriction. She can't/won't talk about feelings, she pushes everything down, won't let herself cry if she can possibly avoid it, is extremely moody, very often has a really sulky, grumpy scowl on her face. I am so worried about what her life will become if we cannot shift her out of this place within herself somehow. And how the hell did this happen anyway? I absolutely bent over backwards to meet all her baby needs, I was a calm, patient, loving and adoring mother in those days and followed continuum concept/attachment parenting principles because I loved to do so and because she was such a thrill and a joy to have. It was supposed to give her a completely secure base from which to move out and explore the world. And something, whether it's biology or maternal anxiety while she was in the womb or just something we have failed to do when she was much littler, or a combination of them all, has left us with this anxious and frankly often rather unpleasant child.

Both girls just want me all the time. They want me to bring them downstairs in the morning, me to do bedtime stories, and just about everything else inbetween. Daddy won't do - they complain if it's his turn (despite him being much nicer than me a lot of the time). Shannon demands carries or piggy-backs several times a day (not often agreed to, but the demands are wearing nonetheless) and Jade leaps on me at any opportunity trying to ride me like a horse. And this is despite my absolute rage at her continuing to do it and making it extremely clear that it drives me mad.

I was away at a conference at the weekend with work, and had an absolutely lovely time. I had forgotten how energised I am by ideas, and interesting conversation, and feeling like what I do has a purpose and is successful and respected. I was so fed up when I got home. I didn't want to be here at all, didn't want to go back to screaming, whining children and mess and ungratefulness and repeating the same phrases over and over and over again until I yell and shout and say things I regret.

Yet there is no way I can work any more at the moment. Jade is completely unable to function in the outside world without either me or DH with her at all times. She is so, so far away from being able to be in school in a normal way that at the moment I can't imagine it ever happening. I don't know what she's feeling about school at the moment. She missed most of last week because she had a tummy bug, and has missed most of this week because they are doing tests and we've been advised not to bring her in in the mornings (and I can't do afternoons because of Shannon, except on Wednesdays). I kind of don't want to ask her whether she wants to continue going, because in one way (see above) I want her to, so that I can eventually get some of my own space. On the other hand trying to gradually integrate her into school is so stressful and shows up in stark contrast just how different she is from every other child and I frequently want to just chuck it all in and stick to HE. But then I'd have no respite on the horizon at all, and we'd still have to go through some sort of similar process with other groups or social activities anyway.

There is so much of my own that I want to do. I want to study nutrition more, and maybe become a nutritional therapist or something similar. I want to sort out all the bloody mess and clutter in this house and live like decent normal people with a nice house. I want to get on with scrapbooking, reading, thinking, exercising, organising and other things that require concentration and attention. I just can't bring myself to start anything because I know I'm going to be interrupted every 30 seconds and it utterly does my head in and renders me incapable of coherent thought. I'm crap in the evenings because bedtime routine takes from 7pm to 9pm and after that I'm too tired and resentful to start anything. And neither do I plan or organise any interesting HE stuff, nor do my children come up with anything that looks nearly as educational as other children seem to do, nor can I take Jade to groups or anything interactive, so I'm doing a completely crap job of HE too.

And there is no uplifting ending to this post. I just hope someone somewhere will tell me where I can get a personality transplant for Jade.

13 comments:

Jax said...

Oh Joanna. I don't know whether I can do wise and insightful, but I can start with sympathy and hugs.

First of all, I am utterly sure that you are very there for your girls and have done everything that you possibly could to give them the best start in life, so second guessing where you are now is not going to get you any further forward.

I don't know how Jade has got to where she is, but I'm sure it's nothing you have or haven't done, and it must be absolutely murder to be unable to think of anything to help. Except that you are doing what you can, you are facilitating what must be a very difficult transition for you all, and tbh, I suspect an ideal one. I can completely understand and respect the need for adult me time to work, it is one of the times that I feel most split down the middle as I have loved the various jobs that I have had and yet also feel that I should be more present for the offspring too.

I think that you can only keep on keeping on, you are accessing support - are you (family) seeing child psychologist? Could there be some underlying chemical issue? (I know nothing about anxiety/ depression in children I am afraid).

I hope that someone wiser than me comes along soon with something other than what feels like a stream of platitudes.

More hugs.

HelenHaricot said...

oh Jo, many hugs, however useless they are. I really do feel for you. i don't know how you get from where you are to where you need to be, but i think it has to be with the help of child psychiatry and family counselling/involvement.
i am passionate about HE because it works for our family. But if it was making me or chris so miserable, we wouldn't be doing it. i guess the problem is that jade really seems to need it. i don't think you are doing a crap job of HE, but that you are pounded into a heap by trying to cope and deal with all the other things. SO I am going to be way out of line with some options.
1. send shannon to nursery/school. she would be fab to HE, but she will also enjoy school and get a lot out of it.
2. you then don't have to deal with squabbling and fighting most of the day.
3. what alternatives are there for jade - explore these with the care team available to you. you need help, and so does Jade to blossom into the girl you know she could be.
then maybe you will have an option to be yourself for at least part of the week. is it poss for DH to work from home 1 day a week [i think he did it before] and ? was it dad for a half day to give you a day and a half a week to start on the things you want to start with?
again, really, many hugs. I wish i had a better answer for you, and hope someone else can think of better alternatives.

Unknown said...

Oh Jo, I'm so sorry to read that you are so torn and things aren't working out for you and for Jade.
The first thing I'd say is that impossible though it is to do, you really shouldn't be blaming yourself. As you said yourself in your post Jade was the recipient of the very best years of parenting you ever gave. She is not just a product of you but a result of all sorts of other factors - you must view the positives and the breakthroughs and realise that every good thing is down to you. You have been the very best mother you can be - I know I, and many of your friends are in awe and admiration of you. Don't focus on the odd ten minutes when you lose your patience or wish life was different. You can't take personal responsibility for every aspect of Jade's personality and needs, you must not let blame weigh you down.

Small children are wearing, energy sapping and demanding. Whilst accepting that and being in the middle of it still you can still plan for the future and think ahead to the time in the not too distant future when your time will become more your own. Maybe if you write down all the things you would like to change / have in your life /alter to have less or more of and then start to work through them seeing what sort of time frames are feasible. Think about small things that could change now (Bill doing bedtimes more often so it becomes the norm rather than an every other time occurance giving you those couple of hours each night to tidy up / study / do whatever you feel would give you a real feeling of having achieved something each day), things you would like to have improved by the end of this year, by this time next year, in two years, five years, ten years etc. There are times I resent the years slipping away from me and fret about things I meant to have done but thinking ahead like that and realising this is just one chapter of my life and will one day be my past to look back on when I have far more time to call my own again makes me feel better.
It's easy to feel all the many aspects of life that are not great added together make for an insurmountable amount of negative stuff you just can't move past but maybe breaking it into smaller goals could help?
Does Jade want to change things? Does she recognise the good things about herself? I think it's easy to get caught in a vicious circle of acting badly, realising it and deciding you are bad so then acting badly and so on. Maybe if she was focussing on the good stuff about herself she would be better able to demonstrate those traits more often?
Please know that all this is being typed without thinking it through much, out of love and support and hoping there might be something in the above that will help. Feel free to disregard it all if it doesn't!

HelenHaricot said...
This comment has been removed by the author.
HelenHaricot said...

i think the others have said it so much better!
lots of hugs required. i think the list is a good place to start, and with time lines in place. ahh, i have no good ideas, but plenty of compassion.

Sarah said...

just hugs from me too, I can't imagine how difficult it must be to have something like that pervading life. Exhausting, overwhelming and all that stuff.

I do wonder if Shannon's behaviour with you is simply copying her big sister? Definitely sounds as though she might benefit from school, if only to give her some space where *she's* not affected by Jade's issues.

FWIW it does sound like you need to access some sort of support for the whole family. If one of you is having to not work to care for her then I guess there should be benefits you can claim. In Devon we have a Parent Partnership thingummy which is an independent (and national, I believe) organisation that helps parents access support, google it in your area or ask around, you might be able to find something? Don't know what you have already accessed.

sending more love, and really sorry that it's only cyber-support.

T-bird Anni said...

I'm not sure I have any wise words either but I don't think for one minute that Jade's problems are down to how you have parented her. Otherwise Shannon would be the same, and she really isn't.

I do think that you need to go and speak to someone about this, for your own sake as well as for Jade and Shannon's. I hate the idea of medicating a child (says me who gives Aprilia melatonin every night...) but I do think that if it is necessary to help her get onto an even keel and learn how to cope with the world then it may be worth looking at if it's apropriate for her. But regardless of that, you obviously need more support than you are getting so going and wailing at the GP may be in order?

Joanna said...

Thank you all for your kindness and thoughtfulness. I think these issues swim round and round in my brain in the background until something (in this case, a really enjoyable conference) brings it to the fore and it all erupts. And I could be using my time better - instead of sitting at the computer BKing and FBing and e-mailing I could go to my bedroom for a 15-minute time out and try and think more clearly about things.

Some factual stuff - Shannon is already at nursery 4 mornings a week till 1pm so that does give Jade and I 2 or 3 nice quiet mornings together which feel much more peaceful. She is scheduled to go to school in September. The original thought was that they would both be in school by then, for a year, to give me time to regroup and sort stuff out and then we would re-think. It's definitely not going to happen that quickly for Jade - it is going to take months or years to integrate her into school if that's what we really want to do. DH is home all day on Wednesdays when I work all day, and I also work Thursday mornings when Jade comes with me. We do receive Disability Living Allowance at the middle rate, which has definitely helped. And we have been receiving some support for Bill and I but with school that's now become really difficult for us to find a time when we can go. It's not a psychologist - it's a psychiatric nurse - and although it's useful I still really feel we need some clinical psychology support for Jade directly.

It did occur to me last night, after reading a couple of comments, that if Jade wasn't at school, but Shannon does go in September, then by Oct half-term Jade and I would have 9-3pm each day. Then I could set a really clear timetable, e.g. we do some concentrated HE stuff from 9.30-11, and then 11-12 or 12.30 is MINE for me to get on with my stuff uninterrupted. Then we could do more creative, crafty, free-floating stuff in the afternoons. I'd still have to be working with her on integrating her better into groups like Brownies, but seeing as she enjoys those and wants to be there, and they're not such big daunting groups, it would be easier than school. OTOH, one of the reasons for trying school was that I was having real trouble finding people locally (and me a community worker with tons of local contacts) willing and able to 'take her on' and help me to get her used to other people and talking with other people. School gives us a ready-made free source of people whose job it becomes to work with Jade and to help her. I don't know - I know I would receive a ton of pressure and criticism locally for giving up on school, which should not influence our overall decision but is pressure and stress I could well do without.

Anyway Jade is hopping up and down wanting to get on with doing her birthday party invitations, so I'd better go and help her!

Unknown said...

Just what they all said realy. It isn't you, you have 2 very different children who are both the product of you and one is utterly different to the other. The pain in acepting that you have effectively got a disable child (i think that sounds brutal but there isn't a better way of putting it) is off set by knowing - and accepting - that you get special dispensation as of right because of that. And you do - she is hard work and she is compounding it by giving you very little back, even though that is not her fault.

I doubt i can say anything wise and insightful. I think routine, clear boundaries, relentless pushing away at limitations and a combination of love and tough love are your only real options. Such as ou can, you simply have to try and teach her that whatever her feelings, some things are non negotiable. It seems like respect of family, helping in the house and behaving in a way that doesn't cause others pain are things to work on. It is minute by comparison but we still have to remind Maddy of certain behaviours and one is that it is not okay to hurt things or people if you get angry.

For what it's worth, n your circumstances i would not only feel the same (and regularly did when Maddy drove me to my wits end and no one seemed to understand) and i'd be doing the same too. Hugs.

Unknown said...

Apologies for crap spelling; only laptop has internet and me and the keyboard don't get on.

Kirsty said...

haven't had much time to think or read through other comments but just sending a hug as you sound like you need it big time. (((Joanna)))

Unknown said...

So sorry to hear you're feeling overwhelmed. I'm afraid I don't have anything hugely helpful to say.

Michelle said...

Wish I could say something that could be of some help. Lots of hugs and I do keep thinking of you. xx